I am 31 years old and have been suffering from chronic migraines for seven years. I have had migraines all my life, the first one was when I was in fourth grade, and as I got older they got worse. My migraines turned into chronic migraines seven years ago, a month after I had a kidney removed, and over the last seven years have become so debilitating that I can no longer work or have much of a social life.
Bright lights and fluorescent lights are my major triggers, and when I go on the computer I have to wear dark sunglasses. I also have to wear my dark sunglasses that I had to have made for me most of the time. Because of that, I can no longer work, go shopping or be outside for a long period of time.
Over the last seven years I’ve learned how to live with this silent disease. Many people don’t understand the pain, frustration, hopelessness and sickness that comes with this disease. Chronic migraines are such a silent sickness that causes a lot of frustration and can lead to depression. I get migraines 3 to 4 times a day, I lose my vision, and get very nauseous and confused. The only thing I can do when this happens is take my medications and sleep.
I’ve been trying to get disability for seven years now and had no luck. The problem with this illness is because you can’t see it like a broken arm or leg etc. everyone thinks it’s not a big deal. Unless you have experienced this, you will never understand. To be honest, I wouldn’t want them to. This disease is a nightmare and I wouldn’t want anyone else to go through this.
I have suffered so long and I am still suffering, I have developed depression now because of this illness & it took me a while to accept it, but I’m glad I did because I feel a lot better now & with continued medication, treatment and counseling I continue to get better and that’s key.
After seven years I have learned a lot of information and tricks, and that’s what I want to share with everyone. My goal is to help others get through this day by day, because I understand what you’re going through. I understand the excruciating pain, the times where you don’t want to move your head because it feels like a cement block. I understand when you just want to do anything to make the pain go away, and all the times people have passed you off because they think you’re exaggerating, sleeping or being lazy. I understand all those times the doctors have just acted like they have given up on you.
I have had countless tears over the last seven years. I have a great support system which is very important & a great fiancé who has supported me & been there for me. I try and get by with what I have and that’s what’s important. If I could I would start a charity organization for people who suffer from chronic migraines & can no longer work like me, so we wouldn’t have to rely on the government when we simply cannot work because the moment we start a job within 10 minutes we would have a migraine and would have to go home & no company would put up with that.
I sympathize with all of you. I have been through it all, I’ve tried many treatments and medications and tried many natural ways to help. I learned a lot over the last seven years and I want to share and help others in need as much as I can. I want to share what has worked and what hasn’t, tricks that make the headaches and migraines get better, and information on migraines and the different types of migraines. My mission is I want to help others suffer like I do. If I help one person that will be enough for me.